Girl born with no kidneys has finally finished with surgery after 27 major operations

  • There were times when we thought Alice wouldn’t make it, admits father

By
Chris Slack

Last updated at 9:02 AM on 6th February 2012

A ten-year-old girl who was born with no kidneys and has endured 27 major operations is celebrating after having her final operation.

Alice Skinner, from Hartlepool, was born with stumps for kidneys after they failed to develop in the womb.

But after years of treatment, tests and surgery, she is now looking forward to her 11th birthday next month.

Celebrating: Alice Skinner has finally had her last operation after enduring 27 in the past ten years after she was born without kidneys

Celebrating: Alice Skinner has finally had her last operation after enduring 27 in the past ten years after she was born without kidneys

Her final operation took place two weeks ago after three years of dialysis affected her legs and caused them to become bowed.

Her father George, 41, said: ‘There were times when we thought she wouldn’t make it.

‘We see each birthday as a milestone. We never thought we would see this far. She’s a proper grown-up little lady now too.’

Alice’s condition affects just one baby in a
million born in the UK and she came close to death many times.

When she was six months old she became the youngest person in the UK to receive dialysis

Her family then made trips three times a week to the Royal Victoria Infirmary in Newcastle for dialysis as she waited for a transplant

Alice just after she was diagnosed with malformed kidneys when she was only six-months-old

Alice just after she was diagnosed with malformed kidneys when she was only six-months-old

Both parents were unsuitable as donors and doctors were running out of veins to place her on dialysis.

In April 2008, she finally had a transplant with an imperfect match as no perfect match could be found.

That operation allowed her to make up for lost time by drinking Coca Cola, eating chocolate and crisps and all the other food that had previously been banned.

However a year later she suffered a setback which saw her needing brain surgery after fluid build-up in her head.

Her father added: ‘The surgeons were really quite surprised she got through it and said, “We don’t know how she’s still here”.’

He continued: ‘Being on dialysis for
seven years took its toll on her. It affected her calcium levels because
there was no absorption through kidneys, so her knees bowed out.

‘That has just been corrected in an operation. She’s had two hinges put into both her knee caps to stretch them out.

“It’s a big operation, but she was looking forward to getting it done.

‘After the operation she had an
epidural for two days to make sure she had no pain and after that she
was put on morphine, but she was out of hospital within days, tottering
around the house on crutches.

‘She’s had 27 operations in 10 years and that’s quite enough for anyone.

Alice Skinner preview

Proud: Alice’s father George has spoken of her battle and said there were time when he was worried she wouldn’t make it through

‘We hope that’s the last big one
though – she’ll need to have the hinges out at some point, but we would
like the operations to stop now, thank you.’

Despite her problems Alice has taken up table-tennis, representing Newcastle as a member of the hospital’s Children’s Transplant Games Team.

Last year, she travelled to Belfast for the British Transplant Games and won a silver medal.

She had previously been awarded a ‘Child of Courage’ award for her health problems when she was aged three.

Here’s what other readers have said. Why not add your thoughts,
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What a brave soul. It makes you stop and think. Well done princess for being so very brave.

Please change the misleading headline. As the mum of a baby who did not develop kidneys in the womb I am all too aware that this (bilateral renal agenesis) makes it impossible for a baby to survive. Because this little girl developed ‘stumps’ of kidneys it obviously meant she had enough renal function to develop in the womb. Babies with no kidneys at all cannot help to produce amniotic fluid and their lungs cannot develop. Sadly no child born without any kidneys at all has ever lived for more than hours after birth. I find your headline both incorrect and upsetting.
Congratulations to Alice and her family. I hope her health continues to improve and she lives a long and very happy life.

Well Princess; I think you are an amazing kid! So many operations;so much courage still a pretty smile! My best wishes for a fun filled future..free of hospitals,doctors Nurses!

One brave soul ! All the best for a long and happy life for her and family….

It never ceases to amaze me the oceans of fortitude that children seem to posses. May she enjoy a long and happy life.

She looks just like David Jason. Very good luck to her.

amazing

GOOD LUCK ALICE HEALTH AND HAPPINESS ALWAYS X XX X

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